OK, I haven't talked terribly much about this because I was extremely lucky with my losses. Only one person said something really offensive to me, so the most I had to cope with was being driven mad by people telling me they were sorry.
It is difficult to talk to someone who has suffered a loss of any kind. And it's made even harder when you can't directly relate because you haven't been in that position. I know I feel awkward trying to offer comfort to someone who has lost their parent, because I still have mine, for example. I never got to know my grandparents well, so I don't know how to give solace to someone who was extremely close to their newly deceased grandparent.
Of course all sympathy and comfort are reduced to platitudes and are not terribly helpful in a loss, but we still try. We know there are safe things to say. 'I'm sorry for your loss' and 'Please, if there is anything I can do, let me know' and 'I'm here to listen to anything without judgment or advice if you need someone to talk to' - these are always safe territory. Yes, they feel inadequate, but that's because they are inadequate. Not one thing you say can take away the pain and hurt or restore the dead to life again.
But often, we feel the inadequacy of those words and feel awkward and we have a tendency to start spewing out words to fill the silence. Words we think are comforting or are meant to provide some solace. In fact, these ramblings often stick a knife further in, and make the pain worse.
This is especially true when it comes to miscarriage, because already, we feel conflicted. The baby was never a person, wasn't someone we knew. It wasn't someone whose features we remember or whose personality will be a sore loss. There is no body to bury, and there is no sign of that baby left. Outside the mother, everyone (even the father) is at one remove from the loss, because there was never a physical person. So many of us who suffer pregnancy losses feel guilty about our emotional reactions and our sadness, because there was never a baby in our arms. Likewise, people are unsure how to react, precisely because of the lack of physicality in this loss. The baby was never a solid, real thing to them (at least with early losses), it isn't much more than a concept to anyone other than the mother who is so physically affected by it so early.
Additionally, a large part of what we lost was our innocence. Our hopes and our dreams and expectations for our lives and families are gone. Just as we've adjusted to the expansion and have made plans for the new addition, it is suddenly not there anymore. The months ahead suddenly have a gaping hole in them, where days before were markers of growth and excitement and hope and expectations of events (ultrasounds, planning the nursery, showers, maternity leave). Never again will we approach pregnancy with the same openness and hopefulness. Never again will we assume that a baby will be in our arms in so many months.
Also, we don't know why it happened. Some of us will get a partial answer - a previously undiagnosed (and hopefully fixable) medical issue, a random lightning strike of chromosomal defects, bad luck. But even those answers don't address the core issue of why. We will never know why, this side of life anyway. We will never know why that sperm or egg was bad or why the cell division didn't work correctly (or sometimes which it was). There is always room for doubt and guilt - even if you know that it was nothing you did, you wonder if past living created that bad egg or late implantation.
Finally, we don't know if it will ever happen again. While the numbers suggest that many women miscarry and go one to have healthy pregnancies, and that the vast majority of pregnancies are healthy - the stories inevitably come out of the woodwork after a miscarriage. You go places you never would have before, having previously had no reason to be there. You learn frightening stories of women who miscarry 4, 5, 6 times in their quest for their babies. You learn of women who try for years and can't find anything wrong. You learn of women who find out too late their eggs are not of good quality and their only options become expensive fertility procedures, adoption or donor eggs or surrogacy. You are suddenly in a sorority you never though you'd be in, and you are already one of the small number of pregnancies that didn't go well and didn't work out. What is to stop you from being a part of an even smaller number of women unable to carry a pregnancy to term? God knows I am battling the fear that threatens to rise up and choke me since I've had two miscarriages back to back. You don't know if you will ever get pregnant again, and you know now all too well that getting pregnant is only half the battle. Where two weeks before you were filled with hope and joy and expectation, your future now is totally unclear and there are no guarantees.
So all of that is to say - there are certain things that you may find on the tip of the tongue if you are trying to comfort a friend who has had a loss. There are things you may feel strongly about, that you think would comfort you. Unless you know that person as well as you know yourself, bite those words back that threaten to tumble out into an awkward pause or silence.
Don't say things like this:
'It's all God's plan/ It's all part of a greater plan' - well, that's a shitty plan then. I'd like to know why it was planned for me to go through a whole lot of physical and emotional pain and to bring hurt to those I love because I couldn't carry a live baby. If there is a good reason, fine, but I'd sure like to know. And I'd like to know that the plan includes children in the future too, because at the point of loss, you can't help but wonder if you'll ever be a parent or if your only chance is now gone. I'd also like to understand the blueprints of a plan that take my baby from me, a stable woman in a stable, loving relationship who is financially and emotionally prepared for the responsibility of bringing a new life into the world and raising it - especially when there are multitudes of women bringing children into less than ideal circumstances, and multitudes of women having (or not having) unwanted children or harming their children. That is a plan I don't understand and can't quite get behind if someone won't explain it to me.
'God doesn't give you more than you can handle' - see above. My reaction is along the lines of fuck that. I don't care how much I can handle. I don't want to handle this. I want my baby back. I don't want the physical pain, I don't want the emotional pain. I don't want to look at my husband and cry because I've let him down and I don't want to relive every decision I've made to eat this or that or drink this or that and wonder if it's all my fault. I don't want to have to handle the decisions about natural vs. misoprostol vs. surgery or how much time to take off work when I have to think that this is eating away any potential maternity leave I have.
'It's better in the long run/There was probably something wrong with the baby' - you know what? We don't know that. Maybe there was something wrong. Maybe the miscarriage has saved us a lot of agony down the road. Nevertheless, you don't get to say that, and most especially not before any pathology reports are back. Remember, that was our child that we have lost. It's difficult at the point of loss to think anything in this pain could be to benefit. That is something that may come later, but some people will never, ever believe that.
'Better now than down the road.' See above. There is never a good time to lose your child. I would have preferred, given the option, to have lost Chickadee when Chickadee stopped growing, rather than 4 weeks later. But I'd rather have never lost Chickadee.
'You're young/healthy/got pregnant easily. You can get pregnant again.' or the related 'You already have X number of children. It's ok' Would you ever say to someone who lost a friend that they can make more, or to someone who lost one parent or sibling that they still have others? Of course not. It demeans the loss of the child who was wanted and loved to suggest such a thing. Even if there are other children or we can get pregnant again - this child, this pregnancy is gone.
'It wasn't a good time anyway.' Again, not appropriate. There may be family issues, financial issues, uncertain economy, whatever - it is never a good time to lose a child, and it is never appropriate for someone outside to suggest a silver lining.
So there you are. I hope this gives some insight into why people who have suffered a loss shudder when they hear statements like those above. We get it - we know they are well meaning. Many of us have uttered something similar at some point. We know that people don't know what to say and we know that some people truly believe these things and think they will be offering comfort by sharing.
But if you are ever faced with a friend or relative (female or male - men experience the losses too) in this situation - please, keep your mouth shut. Stick to expressions of love and support and offers to help (concrete offers like bringing over dinner or arranging a gift certificate, or offering to clean, whatever are invaluable when someone is mourning - but don't be offended if they aren't up to chatting on the phone or company), stick to expressions of sorrow for their loss. Talk to them later as well. Many people move on quickly, but for the mother, her body can take weeks to adjust to the loss and emotionally, it can feel like you are stuck or moving backwards because everything around you continues and your immediate life is shattered. Allowing them space to talk weeks or even months later - checking in on them - is so much appreciated.
I hope your loved ones are never in this situation. But if they are - think of what you are saying, please, for the love of everything holy, don't make it worse for them.
"It's a happy life, but someone is missing. It's a happy life and someone is missing. It's a happy life -- "
(Elizabeth McCracken, An Exact Replica of a Figment of My Imagination)
Monday, January 5, 2009
Yeah, being sick sucks.
I have a bad cold.
I spent most of yesterday and today in bed.
Bah.
My head is wrapped in cotton. At least when it explodes from the sinus pressure, it'll be less messy.
Also, why the fuck do I suddenly have fertile cervical fluid? Seriously?
I spent most of yesterday and today in bed.
Bah.
My head is wrapped in cotton. At least when it explodes from the sinus pressure, it'll be less messy.
Also, why the fuck do I suddenly have fertile cervical fluid? Seriously?
News of some variety.
Beta came back - 87.
So . . . definitely not viable, but definitely still pregnant. I didn't talk directly with the midwife, but she wants to do another draw in the next day or so. She didn't seem worried about an ectopic pregnancy with a level that low, which is somewhat relieving.
And related - spotting has nearly stopped.
So the hope is that the spotting was the pregnancy ending and hcg will be dropping rapidly now, and a new cycle will be starting. That is my hope anyway. Pregnancy tests from this morning are still clearly positive, but overall, I'm feeling more hopeful about things. I hesitate to call this pregnancy a miscarriage (I was even hesitant to call it a pregnancy, so calling it a miscarriage seems wrong), even if it technically was. Maybe part of that is hoping to avoid a label of repeat miscarriage. I'd rather just be unlucky.
Anyway, this has all sort of sucked, but there are good things coming out of it. I feel like I've learned some patience and am learning how to deal with things outside my control. I feel better about ttc again and a lot more hopeful generally. The last one is something I find ironically amusing. It's a go figure sort of moment for me, I think.
So there we are, that's what I know for now.
So . . . definitely not viable, but definitely still pregnant. I didn't talk directly with the midwife, but she wants to do another draw in the next day or so. She didn't seem worried about an ectopic pregnancy with a level that low, which is somewhat relieving.
And related - spotting has nearly stopped.
So the hope is that the spotting was the pregnancy ending and hcg will be dropping rapidly now, and a new cycle will be starting. That is my hope anyway. Pregnancy tests from this morning are still clearly positive, but overall, I'm feeling more hopeful about things. I hesitate to call this pregnancy a miscarriage (I was even hesitant to call it a pregnancy, so calling it a miscarriage seems wrong), even if it technically was. Maybe part of that is hoping to avoid a label of repeat miscarriage. I'd rather just be unlucky.
Anyway, this has all sort of sucked, but there are good things coming out of it. I feel like I've learned some patience and am learning how to deal with things outside my control. I feel better about ttc again and a lot more hopeful generally. The last one is something I find ironically amusing. It's a go figure sort of moment for me, I think.
So there we are, that's what I know for now.
Saturday, January 3, 2009
Home Again, Home Again, Jiggety-Jig!
That is what my mom always said as we pulled into the driveway, whether we were going home from school or from a two week trip to other states of the union.
Home again, home again.
It's a comforting statement, as soothing as her voice when I don't feel well. And it applies equally to my return to my home, away from her.
We are home again, and as has become routine, we left my mom all alone, waving in the driveway, as I blink back tears and drive away. I miss her and I am always sad to leave her all alone.
However, returning home - ah, home. The comforts of being able to be ourselves, to be comfortable, with our things around us. To have cable and internet, to have all our distractions and luxuries like our own bed. Oh, I love my bed.
The holidays were nice - nicer than I expected. Though I am not sorry to be home again, and no longer running from one group to the next, trying to balance our need to enjoy the last rest from work for some time and seeing every single family member an equal amount of time.
It is good to be home. But it is bittersweet.
Home again, home again.
It's a comforting statement, as soothing as her voice when I don't feel well. And it applies equally to my return to my home, away from her.
We are home again, and as has become routine, we left my mom all alone, waving in the driveway, as I blink back tears and drive away. I miss her and I am always sad to leave her all alone.
However, returning home - ah, home. The comforts of being able to be ourselves, to be comfortable, with our things around us. To have cable and internet, to have all our distractions and luxuries like our own bed. Oh, I love my bed.
The holidays were nice - nicer than I expected. Though I am not sorry to be home again, and no longer running from one group to the next, trying to balance our need to enjoy the last rest from work for some time and seeing every single family member an equal amount of time.
It is good to be home. But it is bittersweet.
Friday, January 2, 2009
All done now.
Blood is drawn, but results will not be available before Monday. For a viable pregnancy, the least we would need to see is about 1200. At least, over 1000 - that would be within a standard for the time it was drawn (on the low end though) and a normal doubling rate of roughly 48 hours. My gut instinct is that it will be way lower, probably in the 400-500 range, if even that high at all. I am expecting to need an u/s to be certain there is no ectopic pregnancy.
I just have a very difficult time reconciling 7 days of red spotting/bleeding/light flow (with some tmi small clots/tissue - smaller than a normal period for me though) and the initially low beta with potentially viable pregnancy, you know?
I know there is still something inside me that is hopeful I'll get wildly wonderful numbers back and we'll immediately do an u/s where we will see a sac in the uterus and a flittering, beating heart and we'll find that progesterone is the issue and it will be fixed and lovely and in 8 months, I will have a squealing, shrill, beautiful bundle of joy in my arms.
But that most definitely has the tenor of fantasy about it, doesn't it?
I'd just be really happy to settle for not requiring surgery, honestly. It wouldn't surprise me at all if the level were even lower that what I mentioned above, closer to 100. I don't even know what that would mean.
I'm just ready for it to be done, one way or another. To resolve into a healthy pregnancy or to be gone and a new cycle started. I haven't even updated my chart in 2 weeks, because I truly have no idea what to put in there. I just wish for the New Year, that if this pregnancy is doomed (as I feel it is) that the next one comes soon and just in the way it should. A normal, healthy, happy, straightforward pregnancy that carries to term and delivers a healthy, gorgeous baby into my arms. Hell, I'll even take ugly. That's my hope for the New Year.
I just have a very difficult time reconciling 7 days of red spotting/bleeding/light flow (with some tmi small clots/tissue - smaller than a normal period for me though) and the initially low beta with potentially viable pregnancy, you know?
I know there is still something inside me that is hopeful I'll get wildly wonderful numbers back and we'll immediately do an u/s where we will see a sac in the uterus and a flittering, beating heart and we'll find that progesterone is the issue and it will be fixed and lovely and in 8 months, I will have a squealing, shrill, beautiful bundle of joy in my arms.
But that most definitely has the tenor of fantasy about it, doesn't it?
I'd just be really happy to settle for not requiring surgery, honestly. It wouldn't surprise me at all if the level were even lower that what I mentioned above, closer to 100. I don't even know what that would mean.
I'm just ready for it to be done, one way or another. To resolve into a healthy pregnancy or to be gone and a new cycle started. I haven't even updated my chart in 2 weeks, because I truly have no idea what to put in there. I just wish for the New Year, that if this pregnancy is doomed (as I feel it is) that the next one comes soon and just in the way it should. A normal, healthy, happy, straightforward pregnancy that carries to term and delivers a healthy, gorgeous baby into my arms. Hell, I'll even take ugly. That's my hope for the New Year.
Thursday, January 1, 2009
Cramps suck.
Not a newsflash, I'm aware.
Nevertheless, they suck. I've been having a lot of them on the left side, which is kind of worrisome in terms of the potential for an ectopic pregnancy. Nothing really sharp or painful, and I also have cramps in the middle general uterine area; in fact most of today's cramps have been centrally located.
But now's cramps are on the left and kind of persistent. Not fun. Not even 'I need Advil STAT' bad, but . . . yeah.
I'll be going for bloodwork at some point tomorrow. I fear the results. But there it is. If they are where I fear they will be, then I'll need to go for an u/s sooner rather than later. Suck suck suck.
Nevertheless, they suck. I've been having a lot of them on the left side, which is kind of worrisome in terms of the potential for an ectopic pregnancy. Nothing really sharp or painful, and I also have cramps in the middle general uterine area; in fact most of today's cramps have been centrally located.
But now's cramps are on the left and kind of persistent. Not fun. Not even 'I need Advil STAT' bad, but . . . yeah.
I'll be going for bloodwork at some point tomorrow. I fear the results. But there it is. If they are where I fear they will be, then I'll need to go for an u/s sooner rather than later. Suck suck suck.
Yet again, I am stumped.
This morning's tests back to immediate and dark.
Bah. Who the hell knows? Should be able to get bloodwork done tomorrow. Still crampy and spotting. Red spotting. Not much fluid, but I still feel leaky, which is not a lot of fun, if I'm being honest.
I worry about the results of the bloodwork. Like it changes anything, rather than giving answers. Just meh. I'm so tired of it.
Bah. Who the hell knows? Should be able to get bloodwork done tomorrow. Still crampy and spotting. Red spotting. Not much fluid, but I still feel leaky, which is not a lot of fun, if I'm being honest.
I worry about the results of the bloodwork. Like it changes anything, rather than giving answers. Just meh. I'm so tired of it.
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